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Welcome!


We are a part of Cure HHT Team, joining others in the HHT community across the country, to fight HHT disease by hosting the 2nd annual fundraising Walk event on June 22nd in Washington, DC.

This is an exciting time to join the fight to cure HHT and to take on the challenge of this fundraising endeavor. In addition to fundraising, we are committed to raising awareness for HHT. Our efforts, together, move the needle closer to finding the cure for HHT.

What is HHT? Hereditary Hemorrhagic Telangiectasia (HHT), also known as Osler-Weber-Rendu Syndrome, is a genetic blood vessel disorder that affects about 1 in 5,000 people worldwide.
We need your support to move the needle together to cure HHT. Our goal for this event to raise $10,000 and to have 100 walkers join us on June 22nd.

Who is the HHT Foundation?
The HHT Foundation International, Inc. is the only organization advocating for research, education and legislation for HHT. The mission of the foundation is to find a cure for HHT while saving the lives and improving the well-being of individuals and families affected by HHT.

Will you join us as a Walker, Volunteer or Donor?
Event Details

This is the 2nd annual Cure HHT Walk in DC. June is National HHT Awareness Month.

Plan a trip to Washington D.C., enjoy touring our Nations’ Capitol, visit your Legislators and educate them on HHT, and join us on Sunday for Cure HHT Team Walk Event in DC.

Date:
Sunday, June 22nd
Time: 10am
Location: Washington Mall, Washington DC
Details: The Washington Mall, Washington DC. The walk is slightly less than 5k and goes by the Lincoln and WWII Memorials
Starting Point: In front of Washington Memorial off Constitution Ave and 15th Street

Cure HHT Team is a grassroots fundraising community with campaigns of all shapes and sizes benefitting the HHT Foundation, International. For more information about the HHT Foundation please visit www.hht.org

Recent Donations

Name Amount Comment
Alta Fath $63.00 I hope this awareness helps the cause... CURE HHT!
Cuzzzzz zzzzz $25.00
Linda Bryan $75.00 Sorry to get this in so late.
Ben & Leah Berman $25.00
Yita Rosenfeld $20.00
Varghese & Rani George & family $500.00
Anonymous Donor $50.00
Stacy, ReLisa and Olivia Mitchell $25.00
Albert & Linda Zuccarello $100.00 Peace be with you, Gregory - and with all of us
Lorri Lee Ragan $50.00
Scott Broughton $50.00 Good luck on this effort
Jamie & Richard Braverman /Saler $100.00 Best of luck!!! Run it out of town!!!!!!
Laurel Carnazza $100.00 Jody, I sure hope your day was very enjoyable and successful! I wish you and your family all the best!!!
Dreux Grever Jr. $100.00 For a truly worthy and personal cause - Dx
Caite & Grant Fleming $25.00
susan kopins $50.00
Velvet Frani-Putman $25.00
Anonymous Donor $10.00 Happy Walking
Cam & Jo DeBuck $100.00 Love and support to Jennifer & Family and for the cure of HHT.
Roy Forey $16.00 We made our goal. Thanks everybody. See you all tomorrow . Its going to be a beautiful day
Gillie Mitchell $50.00 Good luck tomorrow, go team Kash!! Thinking of you all from Scotland. Xxx
Joe & Mary Katherine Theis $100.00 Greg was a very special person and we are glad that we can remember him by helping fight this terrible disease.
Kim Grever $50.00 Contribution for the shirts and thanks for planning a great Capitol Hill Day.
Joan and Stephen Carter $30.00
janine good $25.00
Richard & Connie Barcant $100.00
Cheryl Taylor $25.00
Sue & Alan Heffernelli $75.00 Go Kim Go!
Needler and Morris Family $50.00
Rick Needler Needler $50.00
Edith and Claude Moyse $25.00 Good Luck Jody. Have an enjoyable and successful walk. love E&C
Stacy Hickman $25.00 You go girl!
Rich and Pam Decker $25.00
Shari Kenny $50.00 Good luck Jody
Helena Brown $100.00 Thanks, Jody, for walking and for representing us all.
sandy and chris kinney $25.00
Anonymous Donor $25.00 Great job!!
Russ and Sharon Thomas $50.00 Donating and praying for better treatments and a cure.
Roy Forey $25.00 Looking forward to seeing everyone on Sunday at the Mall at 10 or earlier. Just need to raise 1,000 more to meet our goal
Joe, Diane & Joey Jones $100.00
Rich & Marcia Sedlak $100.00
Melissa & Jake Poole $50.00 Walk your butts off! Not too fast, though. You'll get a bloody nose. :) Love you!!
Ted and Katie Junghans family $50.00
Jason Inge $75.00
Anonymous Donor $50.00 In memory of Nelson, Nelson Jr. and Jo Ann Kinney and Michelle Prell, all family members who had HHT.
Anonymous Donor $25.00 Love you both, let's find a cure in your lifetimes!!
Linda Keller $50.00
Anonymous Donor $25.00 Way to go!
Lorine Stovall $100.00 Love from the Stovall's
Patrick Cuttitta $100.00
HHT Foundation International, Inc.
HHT Foundation International, Inc. P.O. Box 329 Monkton, Maryland 21111
royforey@comcast.net